Companionship Diary | Your body is not "your" body

Have you ever felt like your body didn't belong to you?

This feeling has deepened since my mother became ill.

In 2015, after changing departments, he was finally diagnosed with Sjogren's syndrome , also known as Sjogren's syndrome, which is commonly known as "Sjogren's Syndrome ".

Sjögren is an autoimmune disease that affects glands such as: lacrimal glands (causing dry eyes), salivary glands (causing extreme dry mouth), thyroid, lymph…etc.

In short, the unexplained failure of the immune system of patients with Sjogren's disease, so the immune mechanism that was supposed to attack foreign harmful substances such as bacteria and viruses, began to attack their own body tissues and glands regardless of whether the enemy or the other.

(For more detailed disease introduction, please click → here )

Therefore, any medicines and foods that claim to increase resistance should not be used. Chinese people generally have the idea that tonic is good for the body. Since the mother's incident, the family has not dared to take supplements at will.
The age before my mother's diagnosis, I don't know how many opportunities for my body to attack my body are silently added.

In fact, my mother already had symptoms when I was young. At that time, it was just dry mouth and peeling lips. Referral to immunorheumatology. At the time of diagnosis, he also received a major injury and illness card that does not require renewal , which means " this is a disease that will never be cured in a lifetime ".

The cause of Sjogren's disease is currently unknown. Since the incidence rate of women is ten times higher than that of men, I have heard rumors that it will be passed on to women. Although it is only an unconfirmed rumor, the medical cause of the disease is unknown. Unverified rumors, I still believe three points. In addition, the doctor asked at the time of diagnosis, "Do you have a daughter?" In fact, fear has been hidden in my heart, but I don't want to face it. I am not as brave and strong as my mother.

Health is invaluable. People advocate healthy eating and good living habits. However, even cultivating good eating habits and regular work and rest may not guarantee 100% health. It can be seen in the news that many people with good habits and healthy diets suffer from illnesses, and people's health is affected by factors such as genes and growth environments that they cannot choose.

Gradually, I felt that your body was not "your" body, and that my body was not "mine". People have the right to use the body, but not the ownership , and we can't control whether the body is healthy, when the disease occurs or not, or whether the disease is well controlled or not. It's like dedicating everything to the one you love, but you can't know whether the other party's feedback is love or a sword that hurts people; it's like a well-maintained machine that works normally one second, but stops for unknown reasons the next second. generally uncontrollable.

This is not to say that you don't need to maintain good eating habits and regular work and rest, but to sigh about exhausting all the love for yourself, but still losing to the disease.
A healthy diet and daily routine are necessary and the best thing we can do to our body.

My mother never liked beverages, she only drank warm boiled water, and she did not smoke, drink, or betel nut. Her sisters in the family had no related medical history, so the cause of her illness became a mystery.

In fact, before the outbreak of the epidemic, masks were already a must-have item in the home. Mothers must be careful to protect their vulnerable bodies from any bacteria and viruses, even at home.

About the complications caused by xerosclerosis - vasculitis, xerophthalmia, dry mouth, dry skin, pulmonary hypertension, gastrointestinal diseases, lower extremity edema, osteoporosis, tooth damage, we will talk about it later.

Again, we cannot decide how our body responds, but a healthy diet and daily routine are the best we can do to our body.

🌙 If you could pick me up

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